Mothers of children with autism often experience stress and suffer from sleep deprivation. Sacrifices almost always follow as they abandon professional careers and personal ambitions, believing that care for their children “comes first.”
But when mom gives up her aspirations and interests, is that really beneficial for the autistic child?
A link to involvement of autistic children in daily activities
A new Tel Aviv University study finds that a mother’s positive attitude to involvement in everyday activities and a sense of competency in the performance of parental tasks accounts for a significant proportion of her children’s successful participation in day-to-day activities.
The research was led jointly by doctors Orit Bart and Michal Avrech Bar of the Department of Occupational Therapy at the Stanley Steyer School of Health Professions at TAU’s Sackler Faculty of Medicine, and conducted by TAU master’s student Limor Shelef. It was published in the journal Research in Autism Spectrum Disorders.
Like mother, like child
“The study has shown that when a mother feels competent and productive, she performs better as a mother,” says Dr Bart, who has been conducting Autism Spectrum Disorder (ASD) research for 10 years.
“This satisfaction is as important for children as it is for mothers themselves. If a mother engages every day in a variety of personal and professional occupations and gains a sense of personal satisfaction from that engagement, this alone positively affects her child’s participation in everyday activities.
“Our intention was to determine what might improve ASD children’s participation in everyday activities from showering and brushing teeth to after-school activities and playing with friends,” Dr Bart says. “We focused on a unique perspective — the relationship between the mother’s participation and her child’s participation.”
Dr Bart and Dr Avrech Bar, whose specialty is motherhood and maternal health, created a model of child participation that included first and foremost the severity of autism and then several variables connected to the mother, i.e. maternal “self-efficacy” (i.e., how competent she feels as a mother).
The researchers invited 30 mothers of children with ASD and 30 mothers of children aged 4-6 with typical development to participate in the study. The mothers completed questionnaires regarding their children’s participation in life, their own active participation in life, and their sense of maternal self-efficacy.
While the severity of autism was found to be a predictor in 20 percent of child participation, a significant proportion — 30 percent — was found to correlate with a mother’s robust participation in life and high sense of self-efficacy.
Moms: Take time for yourself
“Our conclusions are clear,” Dr Avrech Bar says. “Mothers need to focus on themselves, to take care of themselves — their own careers, education, and leisure. Don’t give up your own interests and occupational aspirations. This might adversely affect your own health and well-being and your child’s. There is a clear lesson here: If you participate meaningfully in life, it is likely that your child will participate too.”
The researchers are currently preparing a family-centered approach to ASD intervention that includes close attention to mothers’ self-efficacy and participation in a variety of activities to promote their children’s participation.
“Today the mother is still the main caregiver but this is starting to change,” says Dr Bart. “Intuitively, I believe this kind of research may benefit fathers as well.”